This week Allred will be on Capitol Hill when HB74 - which would allow doctors to prescribe life-ending drugs when a terminally ill patient makes a clear, written request to end their life - is expected to get a legislative hearing. A week later, her family laid her to rest. 20, at just 27-years-old, Kylie passed away. “She wanted what was left of her dignity. It took her legs first and moved up into her arms and hands and she just pretty much became a vegetable,” Allred said. “She’d been in a wheelchair for about a year-and-a-half. The Legislature gets to make that ultimate decision about life or death, suffering or relief. When she learned of her own fate, Kaplanis told her mother that once she got to the point that she couldn’t take care of herself she wanted to end things.īut in Utah, it is against the law for a doctor to prescribe medications that would end a patient’s life. Kaplanis had researched the issue even before her diagnosis and was a strong believer in giving terminally ill patients a choice. She had a fine line that once she couldn’t use her arms and hands, she wanted to be completed.
“To sit there and have her lose her ability to use her legs, lose her ability to walk, lose her ability to use her hands,” Allred said, “she didn’t want to go through all those steps. Her mother, Tammy Allred, is fighting to change that in honor of her daughter through a bill in the Legislature. As the disease progressed, she made clear to her family she wanted a death with dignity, but Utah state law prohibits assisted suicide. Kaplinis was diagnosed with Lou Gehrig's disease three years ago. Good Morning & Good Night (Constable & Co.(Tammy Allred) A photo of Kylie Kaplanis on Dec 25, 2021.My Life in Sarawak (Methuen & Co., 1913).One of Oscar Wilde's fairy-tales, "The Young King", is dedicated to "Margaret, Lady Brooke, The Ranee of Sarawak". Margaret Brooke composed the national anthem of Sarawak, Gone Forth Beyond the Sea, in 1872.įort Margherita, also in Kuching, was named after her.įort Margherita was erected by Rajah Charles and named after his wife, the Ranee Margaret. Her title of ranee or queen gave her a position in London society and through it she gave prestige to Sarawak.
She financed the education of her sons by pawning the diamond Star of Sarawak, and arranged the marriages of her sons by organising social events for the British aristocracy and introducing her sons to daughters of the British nobility to marry. Once three more sons were born, the couple separated again and lived estranged, with Rajah Charles living in Sarawak and Margaret in London, where she was at the centre of a social circle that included several of the leading literary talents of the 1890s, such as Oscar Wilde and Henry James. Her first three children died within a week of each other on board ship in the Red Sea 1873, while returning to England with the Rajah. Ranee Margaret Brook was described as intelligent, forceful, non-sentimental and with the ability to dominate by her presence and, though her relationship with Charles soon deteriorated, she secured an independent position for herself and left Charles in the 1880s. The Astana was built specially for her as a wedding present by her spouse. She followed her spouse to Sarawak, where she became the first in her position, the previous (and first) Rajah being unmarried. The marriage was arranged to solve the succession issue in Sarawak. She was raised to the title of Ranee of Sarawak with the style of Her Highness upon their marriage. She married Rajah Charles at Highworth, Wiltshire on 28 October 1869.
Her brother, Harry de Windt, was a well-known explorer. The Ranee became legendary during her lifetime as a woman of strength and intelligence, as well as on account of her status, which she shared with the other White Rajahs, of being at once a British subject and also an Asian monarch.īorn Margaret Alice Lili de Windt, she was the daughter of Captain Joseph Clayton Jennyns de Windt, of Blunsdon House, and Elizabeth Sarah Johnson. The memoir offers a rare glimpse of life in The Astana in Kuching and colonial Borneo. She published her memoir, My Life in Sarawak, in 1913. Margaret, Lady Brooke, Ranee of Sarawak (born Margaret Alice Lili de Windt 9 October 1849 – 1 December 1936) was the ranee of the second White Rajah of Sarawak, Charles Anthony Johnson Brooke.
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